The European Society for Clinical Investigation is committed to protecting your privacy. This policy explains how we collect, use and store the personal information you provide to us whether online or via phone, mobile, email, letter or other correspondence.
By using our website or any of our services, or providing us with any other personal information we will assume you are agreeing to your information being used and disclosed in the ways described in this policy.
For the purpose of the Data Protection Act 1998 (the Act), the data controller is the The Golf Foundation, Ambition Broxbourne Business Centre, Pindar Road, Hoddesdon, Hertfordshire, EN11 0FJ. The Golf Foundation has an internal Data Protection (GDPR) panel that leads on ensuring that the organisation is compliant with the requirements of the GDPR and Information Security.
1. Who are we?
The European Society for Clinical Investigation exists to the Society provides a forum for discussion, debate and meeting colleagues in order to advance the science of clinical investigation. Its activities are non-commercional and .
2. Data Protection
In carrying out our day to day activities we process and store personal information relating to our supporters, participants, delivery partners, volunteers, corporate contacts, donors and prospective supporters, and we are therefore required to adhere to the requirements of the Data Protection Act 1998 and all other applicable data protection laws and regulations, including the Fundraising Regulator and requirements of General Data Protection Regulation (GDPR).
3. Your rights
You have the right to:
• Request a copy of the information we hold about you;
• Update or amend the information we hold about you if it is wrong;
• Change your communication preferences at any time;
• Ask us to remove your personal information from our records;
• Object to the processing of your information for marketing purposes;
• Raise a concern or complaint about the way in which your information is being used;
• Object to any individual part of the processing of your data.
The GDPR provides the following rights for individuals:
• The right to be informed
• The right of access
• The right to rectification
• The right to erasure
• The right to restrict processing
• The right to data portability
• The right to object
• Rights in relation to automated decision making and profiling.
4. How do we collect information about you?
We collect personal information in the following ways:
a) When you give it to us directly.
You may give us your information in order to sign up for an initiative such as annual meetings, abstractsubmissions, share your story, make a donation, attend a training workshop, receive a copy of our newsletter. In doing so you specifically and knowingly provide us with your personal information. Sometimes this information is shared with a third party such as unnual meeting partners to help promote the activity but we are responsible for your data at all times.
b) When you give it to us indirectly.
c) When you give permission to other organisations to share it or it is publicly available.
We may combine information you provide to us with information available from external sources including social media, directories and published articles in order to gain a better understanding of our supporters, to improve our fundraising methods, products and services.
5. What personal information do we collect?
Personal information is that which can be used to identify you. It could include your name, date of birth, email address, postal address, telephone number(s), gender, ethnicity, bank details. We do not usually collect sensitive personal information about you unless there is a clear reason for doing so, such as participation in an event, where we need this information to ensure that we provide appropriate facilities to you, or anonymously evaluating programme demographics.
We will mainly use your data to:
• Provide you with the services, products or information you asked for
• Administer your donation or support your fundraising, including processing Gift Aid
• Keep a record of your relationship with us
• Ensure we know how you prefer to be contacted and act upon those preferences
• Understand how we can improve our services, products or information
Profiling and Screening
We may carry out analysis of the personal information we collect about you and add publicly available information to create a profile of your interests, preferences and your ability to support us, including the amount or level of potential donation or legacy you may be able to give. We do this to ensure that we are contacting you with the most appropriate communication, which is relevant and timely and will ultimately provide an improved experience for you. It also allows us to understand the background of the people who support us and helps us to make appropriate requests to supporters who may have the means and the want to give more. Most importantly we do this because it enables us to raise more funds, sooner, and more cost-effectively than we otherwise might.
When building a profile of a supporter or a prospective supporter of the European Society for Clinical Investigation, we may look at geographic, demographic and other information relating to you (such as golf club membership, for instance) to better understand your interest and in order to contact you with relevant communications, requests and invitations. In doing this we may use additional information from third parties (where available) and / or publicly available data, for example, public registers (e.g. listed directorships), press sources (e.g. newspaper articles and databases) and public sources for individuals (e.g. LinkedIn, Queens Honours List).
The information we get from other organisations may depend on your privacy settings or the responses you give to these websites. We recommend that you check these settings regularly.
Sharing your story
Some people choose to tell us about their experiences of European Society for Clinical Investigation to help further our work. This may include them sharing sensitive information related to their family life in addition to their biographical and contact information. If we have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, the information provided, including gender and ethnicity may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report.
6. Financial Information
If you use a credit or debit card to make a donation, buy something online or pay over the phone, we will ensure that this is done safely and securely and in accordance with the Payment Card Industry Data Security Standard. Find out more information about PCI DSS standards by visiting their website at www.pcisecuritystandards.org.
We do not store your credit or debit card details following the completion of your transaction. All card details and verification codes are securely destroyed once the payment or donation has been processed. Only those staff authorised to process payments will ever be able to see your card details.
When paying you yearly fee by bank we wil not store your banknumber or use this in another way.
7. Information sharing & Disclosure
We promise never to sell or swap your personal information with any commercial third party.
We may share your personal information with relevant data processors, with whom we have a necessary relationship in order to fulfil the aims of the charity. These are trusted partner organisations, that work with us in connection with our charitable purposes; and other entities that act as fundraisers for us, sell our products, or provide us with information and marketing. All our trusted partners are equally required to comply with data protection laws and our high standards and are only allowed to process your information in strict compliance with our instructions.
We may disclose your personal information to third parties if we are required to do so through a legal obligation (for example the police). We will never give your information to other organisations for marketing purposes. Your details will only be used by the European Society for Clinical Investigation.
8. Accuracy & Storage of Personal Information
We aim to ensure that all information we hold about you is accurate and, where necessary, kept up to date. If any of the information we hold about you is inaccurate and either you advise us or we become otherwise aware (for instance through word of mouth or publicly available sources), we will ensure it is amended and updated as soon as possible. We really appreciate it if you let us know if your contact details change.
We will keep your information for as long as required, unless you request that we do not do so. We will not keep your information for longer than is reasonable and necessary, taking into account our legal obligations and tax and accounting rules when determining how long we should retain your information. We recognise the right of all supporters and contacts of the Golf Foundation to be ‘forgotten’ in the event of a request, and where necessary donation information can be anonymized.
All the information that we store and process stays within the European Economic Area (EEA). Our cloud server is based in Holland and our Foundations are hosted by CloudVPS within the Netherlands. Our website is accessible worldwide.
9. Our website
When you interact with us through our website, depending on how you use it, we may collect some personal information. However, you can use our website anonymously (‘read only’) and not give us any information at all.
We monitor how people use our website so we can improve it. We do this by using cookies, which you can read more about in this document.
If you visit our website, we may record information about:
• The web pages that you visit
• How much time you spend on the site
• Whether you are new to the site, or a return user
• How you came to our website – for example, through an email link or a search engine
• The type of device and browser you use.
Email Analytics: We measure without cookies the success of some of the emails we send – so we know what content our supporters are most interested in. We receive this information anonymously, and it is not shared.
Security: Although we use appropriate security measures once we have received your personal information, the transmission of information over the internet is never completely secure. We do our best to protect personal information, but we cannot guarantee the security of information transmitted to our website, so any transmission is at the user’s own risk.
We cannot be held responsible for the privacy of data collected by websites not owned or managed by European Society for Clinical Investigation, including those linked through our website.
What are cookies?:
Cookies are small files, typically of letters and numbers, downloaded on to a device when you access certain websites or emails, including the European Society for Clinical Investigation’s website. Cookies allow a website to recognise your device. For more information see: http://www.allaboutcookies.org/
We use strictly necessary, performance, functionality and targeting cookies on our website.
If you do not want cookies to be stored on your PC it is possible to disable this function without affecting your navigation around the site.
If you are using Microsoft Internet Explorer and you wish to block the European Society for Clinical Investigation’s website cookies, you can perform the following:
1. On your browser tools menu, select ‘Internet Options’
2. Click on the ‘Privacy’ tab and then on the ‘Sites’ button
3. Type into the ‘Address of website’ field: www.golf-foundation.org
4. Click on the ‘Block’ button
5. Click OK
Other browsers including Firefox, Chrome and Safari have similar cookie management abilities in their preferences settings, please refer to your browser’s ‘Help’ facility.
Find more detailed information on disabling cookies from allboutcookies.org.
By using our website, subscribing to our services and/or shopping online you agree that we can place the types of cookies set out above on your device.
11. Policy changes
This policy replaces all previous versions and is correct as of mei 2018. We will regularly review and update this privacy and data protection statement and will update, modify, add or remove sections at our discretion. Any changes will be notified through an announcement on our website and your continued provision of personal information, use of our website and any of our services after we have posted the changes to these terms will be taken to mean you are in agreement with those changes.
13. How to Contact Us
firstname.lastname@example.org: Tel +31 88 755 8787
European Society for Clinical Investigation GDPR Panel – May 2018